Michelle’s face was large and innocent. She had a nose like a little beak, and she was balding. It was discovered that she had Hallermann-Streiff syndrome, a hereditary illness of which there are only 250 known cases worldwide.
Michelle was born at Children’s Memorial Hospital, where no one had ever seen it in person.
When the doctor told us we had Hallermann-Streiff syndrome, my heart fell. “I was concerned about how we were going to care for our child who had a rare genetic disease that was one in five million,” Michelle’s mother said.
Michelle exhibits 26 of the 28 symptoms that are associated with the condition. Although the sickness affects only one in five million people, it can lead to a variety of health issues.
CONTINUE READING ON THE NEXT PAGE
The trick to cleaning the oven “effortlessly”. Even the burned fat disappears
Baked Salmon in Foil with Asparagus and Lemon Garlic Butter Sauce Recipe
Amish Penicillin Immune-Boosting Tonic
10 Amazing WD-40 Life Hacks for Your Car You Don’t Know the Half of It
Strawberry Honeybun Cake with Strawberry Cream Icing
When this insect lands on you, BE CAREFUL. Here’s what the Universe is trying to tell you
Baked Mozzarella Stuffed Meatballs Recipe
What is the second hole in the sink for?
Christmas Gooey Butter Cookie Recipe
