Treacher Collins syndrome was the unusual prenatal disease that caused the adorable little boy’s facial bones to develop asymmetrically.
The physicians informed Jono’s parents that he would probably never walk or talk in addition to the diagnosis. Jono’s parents, who were stunned, decided it was too much and left him.
My parents were really taken aback when I was born. Within 36 hours of my birth, I was discharged from the hospital. Someone was assigned to look after me by social services. At the 2015 Nord Conference, Jono recalled the foster carer as a woman named Jean.
Jono’s parents vanished and placed him up for adoption when he was less than two days old. After the hospital got in touch with Social Services, Jono was adopted and reared by a lovely woman by the name of Jean Lancaster.
When Jean saw the young boy, she was neither alarmed nor surprised. She bonded with him right away when she picked him up. “When can I take him home?” Jean asked, turning to face the nurse.
Jono’s foster mother provided him all the necessary love and attention from the beginning, and he couldn’t have asked for a finer or more loving mother.
However, despite his mother’s unwavering support, Jono’s early years were characterized by a lack of understanding from the outside world.
Jono began to realize who he was when he started school. It did not take him long to realize that he did not look like his classmates.
I had the impression that I was the only one in the world who was similar to me and that I was on my own. Even though some people are fortunate enough to win the jackpot or go on to become physicians, lawyers, or professional football players, I always wondered, “Why did I have to end up looking like this?” stated during an Adelaide Now interview.
It’s critical to understand that Treacher Collins syndrome has no bearing whatsoever on a child’s IQ. The appearance of Jono was all that his classmates were interested in. When he would approach, they would make faces and flee, claiming they didn’t want to contract his “disease.”
“I used to keep my mom from knowing how unhappy I was.” He said in an interview with the BBC, “She had already done so much for me.